Research Initiative for Long Term Neurological Conditions

 

 

 

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Useful links

Visitors to the site may find the following links useful:

Policy Research Programme (PRP), The Department of Health:

http://prp.dh.gov.uk/category/research-outputs/

Neurological Commissioning Support Service:

http://www.csupport.org.uk/

Neurological Alliance:

http://www.neural.org.uk/

INVOLVE:

http://www.invo.org.uk/

Downloads

This section contains downloadable files.These are either Acrobat PDF or Microsft Word files.

You will need Adobe PDF reader to access PDF documents, but most PCs will have this installed already. If you don't have PDF Reader, go to the Adobe web site to download the latest version.

Final reports

This section contains final reports of all of the studies. In addition a short and readable summary has been written for eight of the studies.

Transition to Adulthood study

Transition to Adulthood for Young Men with Duchenne Muscular Dystrophy and their Families - full report

Transition to Adulthood for Young Men with Duchenne Muscular Dystrophy and their Families - summary

Short and readable summary

Evaluation of the NSF for integrated services

Evaluation of the NSF for integrated services for people with LTNCs - Full Report

Evaluation of the NSF for integrated services for people with LTNCs - Executive Summary

Evaluation of the NSF for integrated services for people with LTNCs - Technical Report

Evaluation of the NSF for integrated services for people with LTNCs - Appendices

Research team unable to supply one-page summary

Needs for, and experiences of, services by people with LTNCs

The needs for, and experiences of, services by people with LTNCs - Final Report

The needs for, and experiences of, services by people with LTNCs - Executive Summary

The needs for, and experiences of, services by people with LTNCs - Appendices

Research team unable to supply one-page summary

LIFE study

Long-term involvement in fitness enablement (LIFE) study - Final Report

Long-term involvement in fitness enablement (LIFE) study - Summary

Short and readable summary

Mapping Vocational Rehabilitation Services

Mapping Vocational Rehabilitation Services for people with Long Term Neurological Conditions - Final Report

Mapping Vocational Rehabilitation Services for people with Long Term Neurological Conditions - Appendix 1 Questionnaire

Mapping Vocational Rehabilitation Services for people with Long Term Neurological Conditions - Appendix 2 Maps Figures and Tables

Mapping Vocational Rehabilitation Services for people with Long Term Neurological Conditions - References for short report

Short and readable summary

Carers & respite/replacement care

Carers of people with LTNCs & respite/replacement care - Final Report

Short and readable summary

Support for carers

Support for carers: an investigation of support needs and the cost of provision - Final Report

Short and readable summary

RESULT study

Review of Epidemiology and Service Use in Rare LTNCs (RESULT) study - Final Report

Short and readable summary

Inclusive practice in Neuro-Rehab

A case study on the impact of inclusive practice in Neuro-Rehabilitation / Neuro-Psychiatry services - Final Report

Short and readable summary

Palliative Care Needs

Defining the palliative care needs of people with late-stage Parkinsons Disease, Multiple System Atrophy and Progressive Supranuclear Palsy - Final Report

Short and readable summary

Initials & Acronyms

Explanation of initials and acronyms used on this site

Newsletter

This section contains archive copies of the LTNC Newsletter, in both standard and easy-read versions. Click on a link and the document will open in a new window, or right click and select "save" to save a copy to your hard disk.

Standard versions

LTNC Newsletter Summer 2007

LTNC Newsletter Spring 2008

LTNC Newsletter Autumn 2008

LTNC Newsletter Summer 2009

LTNC Newsletter Winter 2009

LTNC Newsletter Autumn 2010

EasyRead version

EasyRead Newsletter Summer 2007

EasyRead Newsletter Spring 2008

EasyRead Newsletter Autumn 2008

EasyRead Newsletter Summer 2009

EasyRead Newsletter Winter 2009

EasyRead Newsletter Autumn 2010

 

Final Report

"A Life More Ordinary - an Overview Report" is now available.

Access the Overview Report as web pages from the links below:

Introductory

Acknowledgements

Foreword

Executive Summary

Introduction

Purpose & Scope of the Research

Key Findings:

The Shape of the Services

The User & Carer Experience

The Cost of Care

Improving outcomes for people with LTNCs

What the research tells us

Building Services for the Future

Conclusions & checklists

Conclusions

Summary checklist for planners and commissioners

Summary checklist for providers and practitioners

Summary checklist for educators

Summary checklist for voluntary and third sector organisations and workforce planners

Reference Materials

Glossary

References

Appendix One - Evidence of progress in meeting NSF Quality Requirements

Appendix 2 - Membership of the Advisory Group

Download the full report

Download the Full Report in Microsoft Word Format or as PDF File.

Download an EasyRead summary of the Executive Summary (PDF Format)

Accessibilty

This site is designed to be accessible to the internatonally-agreed standards of the World Wide Web Consortium.