Quality requirement 7:
Providing equipment and accommodation

People with LTNCs are to receive timely, appropriate assistive technology/equipment and adaptations to accommodation to support them to live independently; help them with their care; maintain their health and improve their quality of life.

Timely and appropriate equipment and adaptations

 

Equitable services that are responsive to changing, ongoing needs

 

 

Indicators of progress

80% of Abbott and Carpenter’s (2009) sample of families/young men with DMD either did not need require equipment from health or social services or reported no difficulties in obtaining it, and very few problems were reported in using equipment.
49% of the sample reported modifications to their current accommodation. Of this group, 12% reported not receiving the financial support they needed from services for modifications to accommodation.

Bernard et al (2010) report that, where there is CINRT or nurse specialist involvement, they may successfully liaise with housing services to secure appropriate accommodation and that these services may provide or facilitate access to specialist equipment and liaise with services to expedite necessary adaptations.

In Fitzpatrick et al’s study (2010) about 80% of respondents reported no problems with obtaining equipment. Hoppitt et al (2011) found that 71% in their study have had some form of home adaptation, while over three-quarters had received aids and equipment, although few received Assistive Technology (Telecare).

In Jackson‘s 2011a study, six out of 61 carers followed longitudinally for two years had had their homes adapted during this time. Two adults cared for had Multiple Sclerosis, two had Motor Neurone Disease, one Huntington’s Disease and one a brain infection. In each case, prompt supply of appropriate equipment and adaptations made a substantial difference to the quality of life of the adults cared for and enabled carers to continue caring in the face of a deteriorating situation.

 

Inhibitors of progress

Bernard et al (2010) found evidence of poor availability of appropriate accommodation, and waiting times for building adaptations and equipment (particularly wheelchairs) were excessive in some areas.
Abbott and Carpenter (2009) report that wheelchair services have variable eligibility criteria for provision, leading to a post-code lottery.

 

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