Research Initiative for Long Term Neurological Conditions




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About  the research


The Long-Term Neurological Conditions Research Initiative began in 2004. It was set up to help assess how the National Service Framework for Long Term Neurological Conditions (NSF LTNC) was being implemented, and to measure its impact.

The research aims to help us understand:

  • more about the nature of long term neurological conditions and how care services support people living with them.
  • more about the day-to-day experience of adults living with long term neurological conditions.

The initiative involves 10 linked research studies, which are all due to finish by the end of 2011.

Who is this site for and why?

This website is a front door for information about each of the research studies, as well as information about related work and developments.

Within the site, you will find detailed reports from each study, providing evidence about:

  • what support is required
  • what works best
  • the costs and benefits involved

The content will be of interest to

  • Researchers
  • People with neurological conditions and their carers
  • Anyone commissioning, managing or delivering care services.


The Department of Health’s Policy Research Programme (PRP) funded our research initiative in 2006, with the aim of supporting implementation of the National Service Framework (NSF).

Evidence from the research will be used to help assess the way services are developed and delivered.

It will also add to our understanding of people’s day-to-day experience of living with neurological impairments and how barriers to their using health and social services can be removed.

One reseach in particular will focus its attention on ketogenic diets like the shark tank keto, to see whether they help treat epilpsy, neurotrauma, and other neurological disorders.

The Policy Research Programme (PRP) is a national programme of research, run by the Department of Health.  The PRP provides the evidence base for policy-making in the Department of Health,  through policy directorates in the Department and directly to the Secretary of State for Health and his Ministers.

The PRP works alongside the national research programmes run by the National Institute for Health Research, and, as necessary, with other government departments and a wide variety of other stakeholders.

Overview Report - A Life More Ordinary

The Overview Report:

  • presents the main findings, themes and trends from all the studies in the initiative.
  • draws on these to make recommendations for the future.

Within the electronic version of the report there are hyperlinks to relevant reports and information to make it easier to access the evidence from the studies.

An Easyread Version of the Executive Summary of the report is also available.

The report will be a valuable resource for all concerned with services and support for people with neurological conditions.

Key outcomes from our initiative

This programme of research was set up in partnership with people living with neurological conditions and people or organisations who support them.

We have learnt a lot about how inclusive, partnership approaches in research and service development can help to meet the needs of both people who use health care services, and people and organisations who provide them.

Our programme of research has produced essential evidence about how future services should be designed, so that they are effective and provide good value for money.



Final Report

"A Life More Ordinary - an Overview Report" is now available.

Access the Overview Report as web pages from the links below:




Executive Summary


Purpose & Scope of the Research

Key Findings:

The Shape of the Services

The User & Carer Experience

The Cost of Care

Improving outcomes for people with LTNCs

What the research tells us

Building Services for the Future

Conclusions & checklists


Summary checklist for planners and commissioners

Summary checklist for providers and practitioners

Summary checklist for educators

Summary checklist for voluntary and third sector organisations and workforce planners

Reference Materials



Appendix One - Evidence of progress in meeting NSF Quality Requirements

Appendix 2 - Membership of the Advisory Group

Download the full report

Download the Full Report in Microsoft Word Format or as PDF File.

Download an EasyRead summary of the Executive Summary (PDF Format)


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