About this research initiative

The National Service Framework for Long Term Neurological Conditions (NSF for LTNC), published by the Department of Health in March 2005, set out the Quality Requirements (QRs) that health and social care services should meet in order to improve the services they provide for people with these conditions.

This research initiative was set up in 2006 by The Department’s Policy Research Programme to assist implementation of the NSF. It was intended that evidence from the research could be used to help measure the impact the NSF was making on the way services are designed and developed. It was also hoped it would add to our understanding of the nature, experience and management of long term neurological conditions.

The LTNC RI is managed and overseen by a small team, led by the Department and supported by an Advisory Group who have a wide range of experience, interest and expertise of living with, and researching, neurological conditions between them. They contribute to the programme in a voluntary capacity. The Research Teams report twice a year to the Department and Advisory Group.

During 2006 - 2007 a programme of seven studies were set up followed by four more in 2008. This web site provides up-to-date information about the research and the people behind it, as well as giving visitors an opportunity to contact the teams. It will be updated twice yearly, when news from the research teams becomes available and is published in the LTNC Newsletter. Links to other sites and items of interest will be included as appropriate.

Policy Research Programme commissions new LTNC research: 2008-2010

In 2008 four new studies were commissioned to add the seven that began in 2006/07. The new research will investigate:

  1. influential aspects of rarer neurological conditions;
  2. what is required for people with neurological conditions to feel included in service development and delivery;
  3. different ways that care-givers can sustain their roles;
  4. specialist vocational rehabilitation (VR) services in England

Newsletter

Download the latest edition of the LTNC Newsletter, which is also available in an Easy Read version.

The newsletter is available in other accessible formats, CD or cassette - please email sophie@ltnc.org.uk for further details. Previous editions of the newsletter can be downloaded here.

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About the Policy Research Programme

The Policy Research Programme (PRP) is a national programme of research dedicated to providing an evidence base for policy-making in the Department of Health. It provides information to the Secretary of State for Health and his Ministers directly and through policy directorates in the Department. It works alongside other national research programmes and consults when necessary with policy research programmes in other government departments and a wide variety of stakeholders.

Accessibility

This web site is designed to be compliant with, and validated to, the latest standards. Read more about accessibility and the LTNC web site.

Abbreviations, acronyms & initials

An explanation of abbreviations, acronyms & initials used in these pages is available.

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